Kristen waiting for the ITC nurse to get her IV started today. It's going to slow for her!
Kristen just told me that she only has 81 days left. Today was long...
Labs 8 a.m.
Infusion Therapy (IV meds) 10ish
Visit with nurse practitioner and pharm D
extra hour added because labs showed she needed more magnesium
Get to go home again 3:30!
I've never realized how tiring doing nothing is. Kristen and I left exhausted. She was feeling better, no more achy bones. Her white counts were excellent, 11.2 (that Neupogen really did it's job). She found it extremely tiring to walk from one area to another in the clinic. I noticed that she was a little wobbly. We are both happy that she is out of the hospital. With her new schedule (more days similar to today), I have to allow extra time in the morning so that I can pack us a lunch and snacks. I'm trying to make sure Kristen also drinks her fluids. Some of the meds are especially hard on the liver and kidneys so it is important to keep her well hydrated. She tells me she may explode. Daily I watch for any signs of GVHD (Graft VS. Host Disease). I look for changes to her eyes, GI tract, and skin. Her liver also is watched but problems there would show up in her labs before we would notice any problem. For the next 2 weeks we visit the lab and infusion clinic daily. On day 30 they will re-evaluate her and possibly (hopefully?) let us come in less often. She wears a mask everywhere we go. She hates that because it makes her feel like she can't breath. So, 81 more days to go!
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